The European Fontan Association
Inspired by the ANZ Fontan Registry and Professor Yves D’Udekem our objective is to share experiences between patients, parents and doctors and ultimately provide researchers and doctors with information to help improve treatment options and long-term health outcomes for patients.
The Fontan operation has been performed for more than 40 years, but there is still a lot researchers do not know about its long-term impact and effectiveness. By helping us to ask the right questions through research projects, you can be involved in providing the Fontan community with a better future.
As a participant, parent or friend of The European Fontan Association, we invite you to join this community to share information and collaborate with other members. This page has been created by us parents to a Fontan child, to build a forum where doctors and patients can ask questions, share their experiences and even guide future research.
Multiple projects have been initiated to support the research on post Fontan live as well as about the Fontan procedure itself.
If you are aware of any ongoing project and want to add this to our liste, don't hesitate to contact us.