The Fontan Registry is a secure database collecting health information on Fontan patients living in Australia and New Zealand since 2009.

It is hoped that this database will be providing researchers and doctors with information to help improve treatment options and long-term health outcomes for patients.

PROJECTS

For the last 15 years, Dr. Mark Rodefeld, a pediatric heart surgeon at Riley Children’s Hospital in Indianapolis, has been working to develop a Fontan blood pump. His research aims to place a small pump in the hearts of Fontan patients to emulate a normal two ventricle circulation, halt the progression of Fontan disease, and reduce the need for heart transplant.

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